The Heart of our Story
Congenital heart defects (CHDs) are the most common birth defect in the United States, affecting nearly 1 in every 100 babies. Gavin’s diagnosis was determined at our 20 week sonogram as Double Outlet Right Ventricle (DORV) with Transposition of the Great Arteries (TGA), coarctation of the aortic arch, and a VSD. He was born at Columbia Presbyterian Hospital and undoubtedly had a challenging road ahead of him. At only six days old, we put Gavin in the hands of Dr. Emile Bacha as he underwent a seven-hour open heart surgery. Complications brought Gavin back to the operating room thirteen days later, to have a permanent pacemaker implanted; complete heart block being a complication of his first surgery. On December 4, 2013, Gavin returned to Morgan Stanley Children’s Hospital to have an unexpected third open heart surgery. The lead from his pacemaker to his heart had snapped and the entire device needed to be replaced. Through his journey, Gavin has shown us what is truly important in life. Gavin is our heart hero…although small in size, he continues to inspire us in a BIG way!